I've had severe eyelid pain and squeezing since 6th grade. At age 31, I started having episodes of eyelid weakness after meals, and shortly thereafter the eyelid tension progressed to episodes of full-closure spasms, and eventually alternating episodes of spasms and weakness throughout my body. For 9 years, my many doctors have diagnosed the eyelid spasms as blepharospasm, but deny the other spasms are dystonia. They are also unable to explain the extremely disabling tiredness and weakness after meals. Looking for help anywhere I can get it....any ideas?
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